"It’s humbling to be reminded that being seen isn’t always the answer." I'll be thinking on this for quite some time. Thanks, as always, for sharing. And CONGRATS on your book! I'm taking my time reading through it, allowing each insight space to breathe. xoxoxo
Aug 20, 2022·edited Aug 20, 2022Liked by Fariha Róisín
I know I'm late and this is a really trivial comment, but it might be useful: I found it super-easy to order and receive Who is Wellness For? from Blackwells, so it is definitely possible to get in the UK and might be a good place to signpost people to who get in touch. I know I should make some kind of deep comment but all I have right now is that I'm grateful for your perspectives which are from such a different place than mine. Your writing makes me entertain different ways of thinking and understanding which as a privileged white girl I always need.
Hi. First of all, love your work. One thing I want to clarify is that Luhrman's and most depictions ignore the fact that Elvis was life threateningly ill for the last part of life, probably with a genetic condition that I'm sure some of your other readers are struggling with as well. This means many of our romantic ideas of his decline are actually underpinned by the very things you write about: chronic illness and the search for healing. There's a lot of evidence to indicate that Elvis was suffering from Ehler Danlos Syndrome which caused his myriad health issues (eyes, heart, gut) and ongoing untreatable pain. I know this because I have this genetic condition and he's often brought up by doctors and geneticists as a probable case. It means that many of the ways his death is articulated and discussed are essentially ableist and incorrect. While I really appreciate this essay, I think it's important, especially because Ehlers Danlos is rare, without a cure, and its research underfunded, to highlight that his finally death was probably caused by aortic issues paired with gastroparesis and vascular issues classical of EDS. If he had received proper diagnosis and care, maybe he would have made it through to the other side. As always, deep thanks for your writing and your nuance and your fierce intellect.
"It’s humbling to be reminded that being seen isn’t always the answer." I'll be thinking on this for quite some time. Thanks, as always, for sharing. And CONGRATS on your book! I'm taking my time reading through it, allowing each insight space to breathe. xoxoxo
I know I'm late and this is a really trivial comment, but it might be useful: I found it super-easy to order and receive Who is Wellness For? from Blackwells, so it is definitely possible to get in the UK and might be a good place to signpost people to who get in touch. I know I should make some kind of deep comment but all I have right now is that I'm grateful for your perspectives which are from such a different place than mine. Your writing makes me entertain different ways of thinking and understanding which as a privileged white girl I always need.
Hi. First of all, love your work. One thing I want to clarify is that Luhrman's and most depictions ignore the fact that Elvis was life threateningly ill for the last part of life, probably with a genetic condition that I'm sure some of your other readers are struggling with as well. This means many of our romantic ideas of his decline are actually underpinned by the very things you write about: chronic illness and the search for healing. There's a lot of evidence to indicate that Elvis was suffering from Ehler Danlos Syndrome which caused his myriad health issues (eyes, heart, gut) and ongoing untreatable pain. I know this because I have this genetic condition and he's often brought up by doctors and geneticists as a probable case. It means that many of the ways his death is articulated and discussed are essentially ableist and incorrect. While I really appreciate this essay, I think it's important, especially because Ehlers Danlos is rare, without a cure, and its research underfunded, to highlight that his finally death was probably caused by aortic issues paired with gastroparesis and vascular issues classical of EDS. If he had received proper diagnosis and care, maybe he would have made it through to the other side. As always, deep thanks for your writing and your nuance and your fierce intellect.